PATIENT RESOURCES:
PEER SUPPORT:
NKF PEERS is a program where kidney patients, living donors, or care partners can connect over the phone with a trained mentor. Mentors are people who have been there themselves and can help others by sharing their experiences
CRISIS AND SUPPORT HOTLINES:
Crisis and support hotlines can be a valuable resource for anyone experiencing emotional distress. The hotlines listed below are accessible from anywhere in the U.S., available 24/7, and free and confidential
National Suicide Prevention Lifeline:
1-800-273-TALK (1-800-273-8255)
Crisis Text Line: Text HOME to 741741
Substance Abuse & Mental Health Services Administration (SAMHSA) National Helpline:
1-800-662-HELP (800-662-4357)
Veterans Crisis Line:
1-800-273-8255 (Press 1)
PKD (Polycystic kidney disease) HOPE Line:
Connect with our support team by dialing 844-PKD-HOPE (844-753-4673). Available Monday through Friday from 8 a.m. - 5 p.m. Central time to answer your questions and direct you to resources that will address your concerns.
https://connect.pkdcure.org/hope-line/
SUPPORTIVE FORUMS
General Forum:
https://chronic-kidney-disease.net/forums
kidney Transplant Community Forum:
https://healthunlocked.com/nkf-kidneytransplant#utm_source=nkf_webpage&ut
Dialysis Community Forum:
https://healthunlocked.com/nkf-dialysis#utm_source=nkf_webpage&utm_medium=w
Parent Forum For Children With Kidney Disease:
https://healthunlocked.com/nkf-parents
COUNSELING & SUPPORT GROUPS
Medicare Beneficiary Counseling:
This website connects you with low fee counseling services to reduce the psychological impact of renal failure and dialysis for Medicare beneficiaries
https://bluemoonseniorcounseling.com/the-psychological-effects-of-kidney-disease/
Support Groups By State:
https://aakp.org/center-for-patient-engagement-and-advocacy/support-groups/
Behavioral Health Program at Rogosin:
Supportive services that provide mental health care to renal patients
https://rogosin.org/specialties/behavioral-health/
Information for Developing an Emotional Support Groups:
https://www.davita.com/education/ckd-life/support?p=1
Support Groups in California:
